6.40am – Get Up!
I have to drag myself out of bed as soon as my alarm goes off this morning as I stayed at Dave’s last night and he lives a bit further away from work than I do. I really struggle to get up and go most mornings. I’m ok once I’m up, but it’s really hard to get going.
8am – Get to work
I arrive at work and grab a coffee. I need it today. Although my new shift pattern has made Thursday easier for me, it’s still the day I’m ALWAYS exhausted! I’m also hoping a coffee will warm me up as I’m freezing today.
10.30am – Walk
I go for a walk to pick some stuff off the printer and find my ankle has decided to start causing some pain. It really is inconsistent and I’m still not sure what triggers it.
1pm – Sick
I’ve got a real sick feeling today. It’s just like my food won’t settle. I was speaking to someone else who has Lemtrada recently and she said she suffers with it too. It seems it’s linked to the fact that when we went through the treatment, we lost a lot of the “good gut bacteria”. That means that sometimes food doesn’t agree with me properly. This will definitely improve over time though.
5.30pm – Leave work
Just before I leave work, I write down a list of what I need to get done tonight. There’s only a couple of things, but if I don’t write it down, I’ll definitely forget!
7pm – Bath
I get in a bath of Epsom salts. Fatigue hasn’t been too bad this week but I tend to find I either suffer from fatigue or pain. It’s always one or the other! My bath is reasonably cool as I’ve despite the fact I was freezing this morning, I’ve been absolutely baking since I got home and I’m struggling to cool down. The reason I’m using Epsom salts is they allegedly help with cramping and muscle pain.
8pm – Reiki
I spend half an hour sending a couple of friends some distance healing and am met with really positive feedback. I also do a quick 20 minute therapy on myself. I’ve got a little slack with using Reiki to heal myself and need to get back into good habits with it.
9.30pm – screens off
I’ve recently developed the habit of trying to put my phone down by 9.30ish. I’m trying to find more quality time reading a book. Getting lost in a book is a great way to distract me from any cramps or pain.
10.30pm – Lights out!
I drop off with ease, although for a Thursday, this is pretty late! Today’s been an alright day – tired and a little bit of ankle pain, but all in all my spirits are in a good place and that always makes MS easier to deal with!