A week in the life of an MSer – Friday

6.55am – Get up

I get up and I’m feeling pretty good! I love a Friday and I’m also going out tonight. I’m ticking something off my bucket list and going to a murder mystery!

8.30am – Call with a colleague

Apparently it’s one of those days. Every other thing Laura says I have to ask her to say again. It’s like my brain and ears refuse to work together. Ears hear it, brain doesn’t process it. It’s horrendous. I come off the phone wondering if I’ve even asked her question…

10.30am – Nystagmus

I hate looking over someone’s shoulder at their laptop. If you want me to look at it, I need to go straight on. Today my nystagmus is playing in full force. What’s one of them? It’s an involuntary flicker in the eye. Sometimes they call it dancing eye. No idea why. It’s not nice! Basically when I look to the left or right for too long, my eyes try and pull back to the centre. It has the impact of making me feel really quite sick! It’s no big deal – nothing MS wise is as long as I know how to adjust and work around it. So with this, I tend to just make sure I’m facing straight on.

3.00pm – Finish work!

I booked a couple of hours off work so I can have a quick nap before going out!

5.30pm – Getting Ready

Just as I get out the shower and I’m all clean, obviously I decide to break into a sweat. I’m absolutely boiling hot and can’t cool down. The knock on effect is I start getting irritable and flustered whilst getting ready. The dress I’m wearing also requires some safety pinning into which Dave has to help with. Part of the less obvious impact that MS has on me includes struggling with really fiddly things. I just have really clumsy hands!

7pm – Arrive for the murder mystery

I’m wearing heels tonight albeit reasonably low ones. When I first moved up north I never used to think twice about wandering around in 4inch heels all day. In fact I used to joke that you can take me out of Essex, but not out my stilletos! Now I can’t do it. Not because of the pain, but because my balance is so shocking. I’ve not even started on the prosecco yet and I can feel myself wobbling about like I’ve had a bottle!

11.30pm Home

I’ve had a fab evening at the murder mystery! I didn’t guess who did it but I really enjoyed it and I laughed more than I have in a very very long time!

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